One-Card Draw

Sep. 23rd, 2017 01:01 pm
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
 [personal profile] wyld_dandelyon is doing a one-card draw.  Tipping gets you an extra card, or you can buy a 5-card reading.

The Spring Solstice

Sep. 23rd, 2017 11:39 pm
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[personal profile] tcpip
In my preferred measuring of time, today marks the the three-quarter mark of the year and it has recently been eventful, rather than the reflective opportunity I take on such quarter calendar markers. The day started with a visit from [livejournal.com profile] hathhalla and [livejournal.com profile] ser_pounce for our irregular cheesequest session, which was followed with me running the third session of our Charlemagne D&D game, involving adapting The Veiled Soceity with the the historical revolt against his rule in in Friuli. Alas, the day ended with a very sad note with a message that [personal profile] caseopaya's mother has taken a turn for the worse and is now in a critical condition in hospital; a plane has been immediately booked to Perth and it is almost certain I will be embarking on the journey shortly afterwards. However, before I depart I have to attend VCAT on Tuesday to have power of financial attorney transferred to me for Rick B. and, with the universe displaying no sense of irony, the meeting of the Victorian Secular Lobby with Lesley Vick on the Dying with Dignity legislation.

On the scale of things there there is little else to report. I have been busy catching up on my PRACE supercomputing course when the opportunity presents itself, and even more so working on Papers & Paychecks at every available opportunity, especially working my way through the "sapient monsters" - cars, computers, photocopiers, fatbergs - that come to "life". There was a good game of Megatraveller on Wednesday evening with our regular group, and I have taken it upon myself to update and extend on existing javascript files for character generation to ship and world design. Finally, workwise things have been at their usual level of mad activity, with staff illnesses pushing our already tight deadlines for the GPGPU project into stormy territory. A lunch sponsored by SanDisk's Gary M., on Friday was thoroughly appreciated with a particularly high quality conversation. After that smashed my way through the somewhat tricky dependency chain for the SUMO traffic simulator. But, as mentioned, all seems to fall into insignificance at this point, even in my rational brain tells me that it is not.

Temple pain

Sep. 22nd, 2017 11:29 pm
fayanora: Steph angry (Steph angry)
[personal profile] fayanora
Sometimes the muscles in my temple get hard and painful after chewing. Usually it passes after an hour or two. But it's now been doing it since around 8 am today and won't go away. It's not as bad as it was; earlier, it was bad enough I had to take pain relievers to get to sleep. But they're still not back to normal, and they still hurt.

It's especially vexing because I don't think I ate anything especially chewy yesterday.

Crowdfunding Creative Jam

Sep. 23rd, 2017 01:07 am
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
The [community profile] crowdfunding Creative Jam is now open with a theme of "black swans."


What I Have Written


From My Prompts 

[personal profile] alatefeline  has written the poem "I Don't See Black Swans" about compensation and decompensation.

Final loading dose... DONE!

Sep. 21st, 2017 04:45 pm
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[personal profile] stonebender
I’ve had trouble writing the last two posts. I’m a slow correspondent, what can I say? I’m not sure this post gets to what I wanted to talk about, but it’s close. I may work on it some more, but I thought letting people know what’s going on was more important than perfect communication.

On September 5th, I received my last loading dose of Spinraza (Huzzah!). After six tries and four successful injections, it seems that I have learned how to advocate the best circumstances for success. Pain meds help in allowing me to stay on the table longer and the longer I can stay there, the more chances for a successful lumbar puncture. The pain meds also help with recovery. The first few times we tried an LP, successful or not, it took several days for me to stop feeling sore. I also make sure I’m not put on the table until the radiologist and doctor are ready to go. That way they have the most time to get the needle where it’s supposed to go with as little pain as possible. So although the last loading dose took a couple hours before it was successful. It was successful!

Most of the staff were new to me. I started explaining what needed to be done and the staff were paying attention. After a bit my morning worker started taking over just by saying things like, “Wasn’t Guy’s wheelchair parked over there and you brought the lift over here?” Basically, asking questions that clarified my instructions. After a bit it was fascinating to watch. She knew me and she has been through this dance with me several times now. She knew what had worked. So I let her take over the logistics. As usual, the staff followed directions and were concerned with my comfort.

I have been paying attention to any physical changes since the treatments began. I didn’t feel much at first. Except that my breathing is easier. I’m worried that the improvement is just a placebo effect. I want to feel like all this effort amounts to something. Seems like the beneficial effects of the treatment are so subtle. [personal profile] loracs and I will be the only ones to notice.

I’m really looking forward to the next pulmonologist appointment. Then I will have some objective evidence that I’m actually improving. Until then I keep racking up observations. Along with stronger lungs, [personal profile] loracs has noticed the grip strength in my left hand is stronger. I feel some strength in my arms, but it’s not like I can suddenly raise my arm above my head. It seems like I can gesture a little more. I think I have a little bit more motion in my right hand when I use my trackball. Nothing I couldn’t do before, but it seems like I can do it longer and with less fatigue.

After the third dose, I noticed that my neck seems to be stronger. Driving in the car is always a bit of a roller coaster ride for me. I can’t hold my head very well, so it flops around a bit. I try to ride in the car in a reclined position, but that cuts into the sightseeing. I usually alternate between reclining and sitting straight up. Still, my head flops around more than I like. I’m noticing now that I can keep my head up most of the time. I also noticed that I can lift my head off the bed if it is at a little angle. I can’t lift it from completely prone. I don’t think I could lift it at all before the Spinraza.

On the possible negative side, I’ve noticed some tension headaches since the fourth dose. They don’t last long and they could just be hay-fever. The pain is similar, but I notice it when I’m being impatient or a little pissed. I am not at all sure if this is related to the drug. That’s about all I’ve noticed at this point. I think I’ll be getting a follow-up appointment in the future. So they can see where I’m at and decide what to do. I may get some physical therapy. (So I can look buff.)

On the reimbursement front, I received one of those “this is not a bill” statements from Medicare. It seems to say that all the hospital stuff is covered, but it doesn’t specifically say anything about whether the Spinraza has been covered. It even says that Connie’s services are covered but nothing about the drug. Connie seems optimistic they will get reimbursed. I’m disconcerted, but I’ll cope. Thanks everyone. I’ll keep you in the loop.

Global Warming

Sep. 21st, 2017 03:47 am
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
 ... is not new, is more solid than ever, but people still aren't listening.
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
Scientists have discovered a geometric shape at the center of reality, whose form defines the behavior of particles.  It's a lot simpler than trying to calculate by hand the way those things move.  It goes from hundreds of pages of math to one. 

Meanwhile I'm laughing my ass off because, well, om mani padme hum.  Not the sound of the chant, but it's literal meaning: the jewel in the heart of the lotus.  Mystical people have been staring at this thing forever, because A) it's inspiring, B) it's really pretty, and C) when you're out of your body on a lot of other dimensions it tends to be right in front of your face and kind of hard to ignore.  Which is okay because A and B.  :D  Anyhow, quantum mechanics might like to take a look at the prismatic branch of sacred art.  Perhaps it will prove inspiring.  Because quantum physics is where magic and science meet, which is why it's cool.  I may not be able to hack the math, but quantum physics still makes my existential intelligence sit up and go squee.

On the downside, this means people are getting reeeeeaaaalllly close to figuring out graviton technology.  This is about as relaxing as realizing that the toddler has just about figured out how to turn on the blowtorch.  O_O  

Birdfeeding

Sep. 20th, 2017 06:22 pm
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
A few days ago, I filled the birdfeeders.  Today I saw a mourning dove on the fly-through feeder, so at least one bird has discovered the seed.  \o/ 

Hard Things

Sep. 20th, 2017 03:50 am
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
Life is full of things which are hard or tedious or otherwise unpleasant that need doing anyhow. They help make the world go 'round, they improve skills, and they boost your sense of self-respect. But doing them still kinda sucks. It's all the more difficult to do those things when nobody appreciates it. Happily, blogging allows us to share our accomplishments and pat each other on the back.

What are some of the hard things you've done recently? What are some hard things you haven't gotten to yet, but need to do?

Many Faces chapter 39!

Sep. 19th, 2017 10:33 pm
fayanora: Steph Candy (Steph Candy)
[personal profile] fayanora
“The Many Faces of Har—er, Adira Potter: Chapter 39”
By = Fayanora

Chapter 39 of The Many Faces of Har--er, Adira Potter is now published!

Chapter title: Hypatia's Gambit

Chapter blurb: Some secrets are revealed, Hypatia uses her Slytherin side to get some information, and Mr. Crouch - gone mental - appears and disappears.

Archive Of Our Own version

FanFiction dot net version (I changed the title at FF.net finally and the links appear to have changed as a result but old links still appear to work so *shrug*)

Big Closet version

Start at Chapter One: "Feeling Sic" = AO3, FF.net, BC

Pears in Progress

Sep. 19th, 2017 10:38 pm
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
I got back out to pick up pears, so we cleaned half a bucket of them, and I put the bits in a crockpot to cook into pie filling.  :D

Tuesday Yardening

Sep. 19th, 2017 04:24 pm
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
Today is warm, partly cloudy, and muggy.  We went out to the orchard and removed many many field weeds from under the pear tree.  It is a bumper year for pears, they are all over the ground already, with plenty left overhead.  If I have the energy, I'll go back out later and pick up a bucket of them to make pie filling. 

Leaving Academia

Sep. 19th, 2017 03:16 am
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
Here is an essay about a professor leaving academia

I went to U of I.  There were parts of it that I enjoyed, and the culture wasn't that bad.  But I can see parallels.  For me it was more a matter of looking at the way education was going, and deciding not to get involved in public education as a teacher.  It was obviously going down the tubes, and that was decades ago; it's infinitely worse now.  So too, many colleges.  :/  I couldn't stop it.  I could sure get the hell out of the way.

Poem: "So Closely Allied"

Sep. 19th, 2017 02:34 am
ysabetwordsmith: (gift)
[personal profile] ysabetwordsmith
This poem is spillover from the February 2, 2016 Poetry Fishbowl. It was inspired by prompts from [livejournal.com profile] my_partner_doug, [personal profile] wyld_dandelyon, and [personal profile] chanter_greenie. It also fills the "separation and reunion" square in my 1-23-16 card for the Valentines Bingo fest. This poem has been posted as a birthday present for [personal profile] callibr8. It belongs to the series Polychrome Heroics.

Read more... )

Poem: "Learning and Growing"

Sep. 18th, 2017 11:14 pm
ysabetwordsmith: Victor Frankenstein in his fancy clothes (Frankenstein)
[personal profile] ysabetwordsmith
This poem is spillover from the September 5, 2017 Poetry Fishbowl. It was inspired by prompts from [personal profile] sweet_sparrow, [personal profile] technoshaman, [personal profile] readera, [personal profile] gingicat, [personal profile] ari_the_dodecahedron, and [personal profile] librarygeek. It also fills the "vampires" square in my 1-1-17 card for the Dark Fantasy Bingo fest. This poem has been sponsored by [personal profile] janetmiles. It belongs to the series Frankenstein's Family.

Read more... )
ysabetwordsmith: Damask smiling over their shoulder (polychrome)
[personal profile] ysabetwordsmith
This poem was written outside the regular prompt calls. It fills the "chocolate" square of my 4-1-17 card for the Month of Rainbows bingo fest. It has been sponsored by [personal profile] bairnsidhe. This poem belongs to the Mallory thread of the Polychrome Heroics series.

Read more... )

Poem: "Can't It Just Be What It Is?"

Sep. 18th, 2017 06:13 pm
ysabetwordsmith: Damask smiling over their shoulder (polychrome)
[personal profile] ysabetwordsmith
This poem is spillover from the August 15, 2017 Poetry Fishbowl. It was inspired by a prompt from [personal profile] chanter_greenie. It also fills the "food" square in my 7-31-17 card for the Cottoncandy Bingo fest. This poem has been sponsored by Anthony & Shirley Barrette. It belongs to the Calliope thread of the Polychrome Heroics series.

Read more... )

Monday Update 9-18-17

Sep. 18th, 2017 03:15 pm
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
These are some posts from the later part of last week in case you missed them:
Sunday Yardening
Wolves and Dogs
Review: Skyr
Friday Yardening
Poem: "Downtime"
Poem: "For Whose Sake"
Thursday Yardening
Good News


This week there will be a half-price sale in Polychrome Heroics.


Poetry in Microfunding:
"The Inner Transition" belongs to Polychrome Heroics: Berettaflies and has 25 new verses.  Stylet enjoys a shower and Valor's Widow starts cooking.  "The Higher a Monkey Climbs" belongs to Polychrome Heroics.  Pips reveals his attraction toward Joshua Tull.  "Two Foxes" belongs to Polychrome Heroics: Iron Horses.  The Iron Horses tell Kenzie what happened to the gaybashers.  "A Haven in a Heartless World" belongs to Diminished Expectations and is now complete.  Read about family in adverse conditions.

Weather has been mild and mostly sunny.  It rained yesterday!  :D  Currently blooming: dandelions, marigolds, petunias, lantana, million bells, snapdragons, zinnias, firecracker plant, white and red clover, morning glories, frost asters, torenia, purple aster, sawtooth sunflowers, pink sedum, purple sedum.